The Kyle MacFarlane Foundation

Funding research and awareness in the field of neurogastroenterology and motility

Kiersten Wood On Dealing With Cyclic Vomiting Syndrome

Kiersten Wood on The Kyle Macfarlane Foundation

I had the honor to meet Kyle back in 2007 when we were both in-patients at California Pacific Medical Center. We were both being treated on the floor where patients with digestive problems were placed. We had been there a little over a week before we were finally able to meet. Kyle and I hung out every day. We were great support for one another and our moms were great support for us as well.

While at the hospital, which ended up being a 33 day stay, the doctors ran a multitude of tests. Despite all this, everything still came back inconclusive. It was hard leaving the hospital without a diagnoses; especially after having surgery to save my life. The hardest part was leaving a friend that I had made there, because he was still too sick to go home.  I found out later that Kyle was released several days later.

Two and a half years after this incident, and after tons and tons of more tests,  I was finally diagnosed with cyclic vomiting syndrome. When I have an attack, they are similar to Kyle’s. The attacks are excruciatingly painful and cause me to throw up about every 20-30 seconds. Afterwards I usually end up in the ER. Since the new year, I have been in the ER about 9 times so far. There are some medications that I have been trying, but they haven’t proved to work too well.

This is something that I will have the rest of my life, but I have embraced it and learned how to deal with it.
Kiersten Wood

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2 Comments

  1. Beth and Dave,Please send our hello for our family. I am sure your days are like a yo yo and I so emathpize with you. I cannot imagine what you all are going through. We are sending our thoughts and a big hug to Kyle. Jessica & Jaki ask all the time how Kyle is doing. They are very concerned and so is everyone. We send our prayers and positive energy in hopes of a perfect healing and outcome. We hope we can see you all soon and Stevens-Johnson syndrome will be gone from you lives.Love,The Perry’s John, Julie, Jaki, Jessica & Jillian

    • wow. So very scary. Hang in there mom. I had erythema noudsom 2 years ago another bizarre idiopathic skin thing, hugely painful but luckily not life threatening. The only thing good about it (aside from being non-lifethreatening) was that it sounded like a Harry Potter spell. It just makes me weep to hear what Kyle is going through! But I get anxious when you don’t post on facebook (and it is, afterall, all about me!). We love and miss you guys

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